So I figure I'm due for an update on how I'm doing....
So last I mentioned going on an Activated-B vitamin to Terry to help with the shaking, and let me tell you it helped!! That is until about 2 weeks ago 😞... It isn't quite as bad as it was (daily, sometimes multiple times a day) but a lot more than the maximum of once a week...
I have also had a new surge of complete exhaustion all month, which is why is taking so long to update. I saw the Dr and she ran blood work, including ruling out mono. Apparently, I've had mono at some time in my life and never knew it! Could this be the cause of my POTS? Or could it be the Lyme Disease that I've also had at some time in my life? Within the blood work, she is also testing for some other tick-carried diseases, but I'm still waiting for those results.
Another thing I want to include in this update is from a Bible study that I'm doing. It is the book called "Discovering Hope" by Cindee Snyder Re (no kick-back from this)... And the first chapter talks about writing "your story"... So I've decided to give it a shot and share with you.
So here is my story. I grew up pretty "normal", with my parents divorcing when I was 10. I moved a lot in the first 13 years of my life, but my my parents settled in the same area after that. I went to college, believing that I could be a "career woman". Little did I know that what started when I was younger, became more obvious in high school and became problematic in college, would change that entirely. I've always told people that I am the epitome of the phrase "if you want to hear God laugh, tell him your plans"! He got a nice rolling on the floor laugh at me! As I said, I was going to be a career woman- no children, husband optional, making enough money to have cleaning service, no real need to learn to cook, and so much more. I knew Christ as my Savior from about the time I was 9, but decided that church and bible reading weren't as important while I was in college. I was living the high life with my then fiance, while he made good money and I went to school so I could make good money too. We commented that IF we did have children, I would want to homeschool, but since I was going to have a career that would be hard so again children were taken off the table by me. By the time I graduated college, my condition had gotten so bad that I barely graduated. Plus, my (by this time) husband, got hurt and couldn't do his job. So money got tight and we felt lost. We came back to where our parents live and tried starting over. 2 weeks after we came home, I got pregnant. Remember how I said that I wasn't having children, yeah well abortion and adoption weren't options in my opinion either. So now I'm sicker than I've ever been, pregnant, jobless (both of us), and generally broke! My husband got a job, my dad helped us with a house, my mom helped with bills way more than I wanted to ask, and we went back to church. Now I am still sick, but I get to be a stay-at-home-Mama and school our son at home. Although we aren't rich, so I have to clean and cook, we aren't as flat broke as we once were- we are at least paying our own bills again. As far as what condition do I have? Well first let me explain how you can experience my "episodes". Fast for 3 days, sleep for about 12 hours in those 3 days, go give a few pints of blood, run a marathon, and stand up as fast as you possibly can after the marathon! My quality of life is described as like someone who has COPD, but yet my condition is so rarely known. Notice I said rarely known, not that it is rare... I have Postural Orthostatic Tachycardia Syndrome (POTS for short). It is a Dysautonomia, which means that my autonomic nervous system cannot regulate itself. My body temperature can be way off for no reason, my blood pressure drops dangerously low with little warning, my heart rate spikes anytime I'm upright and sometimes while lying or sitting, among so many other symptoms.i don't know if you are supposed to gain anything from this, but I felt that this was a good time to share it since I keep saying "I'll get back to that". I don't want pity, just understanding.
Anyway, I pray y'all have a blessed day :)
